Bristol had an appointment to see the neurologist Thursday that we had been waiting about a month for..She laid on the table Happy as always as we waited to see the doctor..She loves to hear paper crinkle and it is even better if she can get it to her mouth..so she played with the paper..The doctor told us he was optimistic that the hypotonia would improve with time....he ordered some blood work to rule out some things that may be related to the low tone and vision problems..he wrote on his report she had abnormal reflexes..this was the first time I had heard this..he told us to follow up with the geneticist...we already have an appointment for next week..he said the geneticist would dig around more to see what she thought the problem could be...No answers really...we took her up to the lab with no luck of getting her blood drawn ..two sticks later and they said come back tomorrow..so the next day we went to the lab at the hospital with no luck again...so we are planning to try again in the morning...

1 comment:

Kerin said...

No answers from the neurologist? My daughter is 18 months now and we've scheduled our first neurologist appt. Reading your post makes me think I shouldn't have too high of expectations. Your daughter is adorable, by the way!