I remember the First time I saw My Allison 's little face..It is unexplainable how I felt..I remember feeling like those doctors had taken my heart right out of my chest..Love at first sight!! She was perfect in every way..
And She was mine..I remember Travis and I just gazing at her in disbelief She was ours!!
That day changed our lives forever..
Watching Allison grow older each year has been pure delight..(well most days)..She has blossomed into a wonderful young lady..
As beautiful on the inside as the outside!!
Caring, Ccompassionate, Loving, So Funny!!
There is not many days that goes by that she doesn't make us giggle and smile..
She is such a big help!!
She is so Wonderful with Bristol (and Madison when I am not watching).
I pray She lives the daysof her life to the fullest..
I pray She always has spunk in every step..
You are a Blessing!
Allison I love you more then you will ever know!!
I want you to know your Dad and I are so proud of who you are!!
Proud for you to call us Mom and Dad!
Happy Birthday Our Sweet girl!!
" His perfect plan"
Knowing his ways are better than mine.
Even though it doesn't take away the hurt,
It takes away the fear!
What shall we say to these things? If God be for us, Who can be against us.
Wow this explains so much..It expresses how I feel..
Some will be quick to tell me "Just trust God"
I was asking myself why is this making me crazy? why can't I just cope?
But after reading this It puts it into words that I just couldn't put to paper myself..
Sometimes the hurt is more than I think I can bear..
Sometimes I don't think I can face another day of Therapy or doctors..
But each day I am renewed.. When my little B wakes up and She is smiling before she evens opens her beautiful eyes..I know that He has a Perfect Plan!
I have no fear that God is going to take care of Bristol..
I love the way my pastor prays "thank you Lord for everything you have already done for Bristol"
Everytime things seem to look gray, It turns out better than expected..
Thank You Lord for answering our prayers..
Bristol's lab results have finally come back and were read..All 3 tests were normal..This tells us that the leukodystrophy that was most likely she had tested negative..We will still watch her closely for losing any skills she has already mastered.. and will have another MRI next July..
We are so Thankful!
So the next day she called and told me to bring Bristol back in the redraw the blood..She could not locate it in any lab they use...She was suppose to leave the orders at the front desk of the neurologist office and attack something to them to assure this would not happen again..She said the labs have to make several stops and must have got lost in the shuffle..
I took Bristol the next morning stopping at the Dr's office first to pick up the orders that were not ready..I was fuming..After talking to the front desk person she went to the back and came back with some orders that said ROUTINE..ugh NO.. I want this rushed..
So we went to the lab over at Wolfson..We always have much better luck there instead of the lab in Nemours..It was so crowded..I had never seen that many people in the main waiting area..We got to the lab and I thought I would ask just for the heck of it if she knew what happened to the original test.The lab person said give her a few minutes and she would look into it because "things just didn't get LOST there"...So after waiting a while she come and got us and took us back and said the blood was never sent to any lab because it was not enough and they needed little more..I said NO..I don't think so..I want a Brand New test..I tried to explain how important the test was through my tears and in a nice way..I was fuming by now..So after everyone pointing the finger at everyone else..We wait again..The result should be rushed this time and we should have some results in about 10 days..
I remind my self of this when it seems I can't see through my tears!
Anyway we talked about the MRI and he showed us slides of her test..I had gotten a copy of the report from our pediatrician a couple days before so I was prepared there would be something to talk about..He was concerned about one part of the brain ..He thinks she may leukodystrophy.. This is where your brain stops making insulators for the nerves or never makes them..It is so complicated..I really don't understand any of it..He says it is possible that the brain appears this way because she is developing slow and so is this part of her brain..of course this is want we are praying for..If she has leukodystrophy it has over a dozen different types..So the Dr ordered 3 different blood tests..2 that would be back in 5-7 days and one that may take 3-5 weeks..So we are desperately awaiting the results..I am not good at waiting..The DR also ordered a 24 hour EEG to once again rule out seizures..I take B Wednesday for that test to spend the night in the hospital..Please pray for our B..
She had this test because we suspect she may be having seizures..So this was the first step to take..
I had to wake her up at 6am and she likes her sleep in the mornings..so it was about 6:20 before she was fully awake..She had to stay awake until she had the test at 1:00...She got really sleepy on the way but we managed to keep her awake..They wrapped her in a sheet to help keep her still which she hated..All these wires were attached to her head with "glue"..She did great once she settled down and was able to go right to sleep just as planned..then they woke her up and did some things with strobe lights ...I laid right beside her on the bed..not easy to see her so upset but glad it's over..
Bristol tried this little car..she was not impressed..It shook like crazy and she bumped her and and was Done..She was happy sitting on top of the table "counting her tokens" and putting them in a and out of the cup..
Bristol loved the parade..She just squealed when she was all the people on the sidewalk..and she was lovin the tractor pulling the trailer..
It is a monster!
She slowed down long enough to have some home grown tomatoes..Yummy if you like tomatoes!
PRAYER CHANGES THINGS!!
p.s. could you hurry deliver person....
I have been on the phone and searching the web to try to find the best possible way to get one..We borrowed something from a local daycare we thought she might use in the mean time but it just didn't work out (so I am hauling it in the back of my truck..gotta get that back next week)...But anyways I thought the insurance was not going to give us any problem and we had things rolling only for them to tell me "this is not something that happens over night..this is a 6-8 week process"...WHAT.. so looks like we will be by passing the insurance and doing things our way..so should you see a yellow snug seat Bronco gait trainer any where let us know..ha ha
She has been introduced to some signs in speech and by her vision Therapist..but I did not think she was having any idea what we were showing her..but she has surprised me once again..I am so happy about this..Tomorrow I plan on finding a book with some More signs we can work on..
We went to church and it was Full..We had a full close to go along with that..I had gotten some frames for the kids to paint and was having second thought about letting them PAINT..but we just went for it and they had a wonderful time..They are all so different..I could pick out their frames by their personality..some painted in such a hurry while others took there time..they were all beautiful and so proud to hand them to the Mom's at the door when they were picked up when church was out..
We went to lunch and ate to much..then home for a nap that lasted to long..
I love Sundays..
We had lots of questions about her weight, therapy (to much, not enough),shots, blood work..all kind of fun stuff..after you talk to so many medical people I have to really think to recall what each one tells us to do..cause usually none of them agree..so this makes it all the more fun for me..
I am so thankful We have a handful of people she sees weekly that helps us so much..they are very concerned and so wiling to listen about our new worry for the week.. When we pull into the parking lot she squeals with delight..And when we go inside and they know her name she always smiles..and when her PT calls her new she smiles so big..We are so blessed to work with her therapist..
Originally uploaded by burris batch
We took B to an early steps play group at Gymboree and she had a blast..She loved the tunnel so much Nana got her one of her own to take home..She also got some shakers, Because she really wasn't ready to leave those behind when it was over..We will be back..what a fun time..